SCN2A Australia fundraising

Fund the research. Support the families.

SCN2A-related disorders change life for hundreds of Australian families. Your support funds research, partners collaboratively with families, and builds the evidence that changes care.

Donate now Join Walk for SCN2A

Registered charity (ACNC) · DGR endorsed · ABN 70 665 788 161 · Tax deductible over $2

Our donors

Thank you to our recent supporters

Every donation helps fund research and support for families living with SCN2A.

Jackie Mace$50
Rosie M$30
Annie$350
Annie$120
Maria$106.12
Margot$106.12
Devra$106.12
Gerard$106.12
Annette$106.12
L$64.67
Andrew$54.84
Bronwyn$54.84
Celine$54.12
Cherisa$54.12
Bronwyn$54.12
Carola$50
Donna$43.60
Gabby, Matt, Ethan & Hugh$33.87
Lyndi$27.81
Paul Phillipson$23.50
Bernadette$22.58

Every dollar, an outcome

What your gift makes possible

$100

Steadies a newly diagnosed family through the hardest weeks of their lives. When the words “your child has SCN2A” land, your gift means no family stands in that moment alone.

$500

Gives a family a seat at the research table. Families know their child better than anyone; your gift supports them to shape and prioritise the research that matters most to families like theirs.

$1,000

Brings families together at a peer support meet-up. For many families, it's the first time they've sat in a room with people who understand without needing an explanation. That connection changes everything.

$5,000

Powers our current research projects across the next four years. This is the gift that keeps discovery moving: sustained, long-term backing for the science our children are counting on.

Together our community has been given $572 through this site, from 10 generous supporters.

For every family

Why we walk

“Some of our children will never walk. We walk for them, and for what comes next.”

Every child with SCN2A is different. For some, seizures start in the first days of life. Some will never speak. Some walk unaided, some will never take a step on their own. What families share is a diagnosis that arrives with no treatment, no roadmap, and almost no one who understands what comes next.

We walk because it is something families can do together, wherever they are and whatever their child can manage. Some push a wheelchair. Some carry a toddler. Some walk for a child who is no longer here.

Every step funds research that could change what SCN2A means for the next child diagnosed, and the practical support that carries families through the years before that research arrives.

Ways to give